Finally, finally, after all the specialists, the tests, the pain, the EGD scope, the pain, the food exclusions and eliminations, the pain...oh the pain, the lack of sleep, the crappy specialists and their lack of help or apparent knowledge of gastroenterology, the elemental formula, the sadness...we have an answer. I'm sure it's not the final answer, but it's something. Something that proves my child nor I are crazy. Something that will finally, finally, finally lead us to a life of semi-normality, a life free of pain for my sweet little Lucy, despite all the odds being stacked against us to ever find a solution (or, rather, the lack of any real help from the medical establishment, both mainstream and alternative.)
This weekend , Lucy took a fructose breath test to test for fructose malabsorption. This means she fasted for 12 hours and then in the morning, drank a fructose solution and blew into a bag into which we stuck a vial that filled with her exhaled air. When one doesn't absorb fructose, it sits in the small intestine and is instead digested by the bacteria that live there. These bacteria devour the sugar and in return output gases, mainly hydrogen and methane, causing intense pain and bloating, among other things. Within 30 minutes of drinking the solution, Lucy was in some pretty intense pain. The clinical standard for a diagnosis of fructose malabsorption is a change in the combined gases of 15ppm...Lucy's changed 81ppm!!!! Definite positive!!
The next thing she needs to be tested for is small intestine bacterial overgrowth (SIBO). This is tested for the in the same manner as fructose malabsorption, only the solution drunk is lactulose. Remember those bacteria I told you about, sitting around eating up the fructose that won't make it's way through the intestinal wall? Well, they don't just sit around eating the fructose. Nope. They multiply. And the more well fed they are, the MORE they multiply, until they have overgrown, and eventually, one has bacterial overgrowth. So now, these bacteria in the small intestine are happy and well fed and reproducing like rabbits and causing more and more gas, and more and more damage. Many of the enzymes with which we digest our foods are actually created in the brush border of the small intestine. As this border is damaged by the bacterial overgrowth, one loses proper production of these enzymes, too, and thus the ability to break down even more sugars -- lactose, disaccharides, and more. Eventually, it doesn't matter what is consumed...the outcome is almost always pain and discomfort.
Now, this is also kind of a chicken and the egg type thing. Sometimes, SIBO happens from other causes in the body - too many antiobiotics, too much constipation, slow motility, etc - and actually causes the fructose malabsorption (fructmal), lactose intolerance, etc; but, sometimes the intolerance can be the cause of the SIBO. The only way to find out is to treat the SIBO with specific antibiotics, follow a specific diet afterward for at least a few months, and retest to see if the intolerances are gone. Often, when SIBO and fructmal/lactose intolerance are found concurrently, treating the SIBO eliminates the intolerances. Even when it doesn't eliminate them, it tends to drastically reduce them, allowing the affected to person to tolerate these sugars in larger amounts (though still small compared to the general population.)
For the time being, Lucy will be following a low FODMAPs diet. FODMAPs is an acronym for Fermentable Oligosaccharides, Disaccharides, Monosaccharides and Polyols. This is the chart we are using to know what foods are safe. In addition, she is also following the Specific Carbohydrate Diet, or SCD, which is a decades-old protocol for healing the gut. Lucy is currently in Stage One. Lucy also does not have proper enzyme levels for any of the disaccharide sugars, which is part of what makes SCD so important for her. Read about the science of SCD here. While combining the two diets is limiting, it is like a great big buffet after two months on an elemental diet of formula only. Lucy is doing well on it and sleeping better, and in much less pain. We have a long journey ahead of us still, but I feel we are finally, finally, finally traveling the right road.
Tuesday, April 17, 2012
Saturday, January 21, 2012
My Poor, Neglected Blog!
This has been a roller coaster of a year. Perfect time to have been blogging, really...but it was the first thing to be pushed aside. Major update on the way!
Sunday, June 26, 2011
The "school" year comes to a close
I breathe a deep sigh of relief as the year comes to a close for us. It's been a tough one. Between food allergies and trying to teach 2 kids, it's been interesting to say the least! All of the focus on health, the cooking, and the lost sleep as a result of reactions was draining, and made it very difficult to stay on task this year. But -- we did it!!!
I had really thought we'd love it, but in reality, I will be very happy when someone purchases our copy of Winterpromise American Story 1 off the trading post online. I wound up really disliking it. Many of the books were way over Lilli's head to the point of tears of frustration (and I was the one reading them out loud, not her!) and the whole thing left a lot to be desired. We wound up having a really great time studying American history this year despite it though! We snuggled up in my bed every night and read oodles of books, reliving everything from Columbus' journey, to Squanto and the Pilgrims, to a great escape of a Native American girl from another tribe, to a family's journey the revolutionary war, and more. We had a blast! And being able to go relive so man of these stories in real life around here in VA made it all the better. We can't wait to go to MA and see more!
Mickade did a TON of work this year in math. We got a little behind our goals with all the moving last year, so he had some extra do this year, and he did great. We started with Math Mammoth which, quite honestly, brought tears, so we moved to the ever-popular Singapore Math 3A. He had a few holes so we backtracked to 2B, moving through it quickly, then back into 3A. He did great with the work, but, quite honestly, the way this program teaches math was too spiral for him and we had tears on a daily basis. I pushed and pushed him through it, when I finally decided this was NOT the vision I had for homeschooling. Never once did I picture us screaming and crying every day when math came out, nor was it EVER this way before us. I'm not sure why it took so long for the lightbulb to go off in my head, but it finally did and we made one more change, this time to Math-U-See. It is mastery based, and different from other curricula in that it focuses on one thing each year. I put Mickade in Gamma, which is multiplication, and he took off! It has been absolutely fantastic for him. He watches a dvd lesson, then does worksheets until he understands it. The program has a whole set of unit blocks that goes with it, and they are used to help the child quite literally see math. He loves it (well, "loves" may be a strong word, but I can say we have not had fighting and tears since we switched.) Because he had background in multiplication but the old program didn't really allow him to get mastery, we were able to go through most of the year's work quite quickly. Out of 30 lessons, we are now on 24 I think, and he will finish it up over the summer. The way it's set up is great, because there are 3 pages for each lesson that focus on the new material, then 3 more that include that plus systematic review of everything from the past. The system makes it easy to customize to each child, since we can do less of the worksheets on topics he gets quickly, and more on the ones he doesn't. There is even a worksheet generator on the website if you need still more. Long story short, he took his first standardized test since VA requires them, and though I don't have the results yet, he kicked butt in math. :) A little hard work goes a long way!
Lillian did great this year. We tend to keep things laid back in K and 1. Lillian is a go-getter though, and even though I had started her with Rightstart Math, she had to have workbooks like Mickade, so she wound up completing Singapore Math 1A & most of 1B, all on her own. Seriously. I barely discussed and answer with her at all. I've learned this year that she is very independent (well, I knew that, but not in regard to learning lol) and hardly wants me in the equation at all! I'm making some curriculum changes for next year, even from what I used with Mickade at this age. I still really like First Language Lessons, but I can tell already she is going to fight me all the way with too much mom-lead work. Since I don't really like Singapore Math, Lillian will move on to Math Mammoth 2 in the fall, since it is an excellent program similar in rigor to Singapore but written to the student, so she can retain her independence and use me when needed! That girl will argue something to death, and never admit she was wrong. She "doesn't need" me to teach her. If she makes a mistake, she finds a way to back out of it as if she knew the real answer, she just wrote that one for fun. Ah, these will be interesting times with her!
Summer is here though, and so is the fun! Our neighborhood is jumping with new kids, they are out playing all the time, and they have a few weeks of camp starting tomorrow (read: mommy vacation time.) We're going to spend most of our time hanging out and having fun this summer, but I'll be slipping in Real Science 4 Kids Chemistry, Pre-Level, over the summer. They've been asking for chemistry and this actually looks FUN, so who am I to deny them? I've never seen a chemistry book explain things to kids in such an amazing way, maybe my kids will have a chance at making it through college chemistry if they need it to achieve their dreams!
I had really thought we'd love it, but in reality, I will be very happy when someone purchases our copy of Winterpromise American Story 1 off the trading post online. I wound up really disliking it. Many of the books were way over Lilli's head to the point of tears of frustration (and I was the one reading them out loud, not her!) and the whole thing left a lot to be desired. We wound up having a really great time studying American history this year despite it though! We snuggled up in my bed every night and read oodles of books, reliving everything from Columbus' journey, to Squanto and the Pilgrims, to a great escape of a Native American girl from another tribe, to a family's journey the revolutionary war, and more. We had a blast! And being able to go relive so man of these stories in real life around here in VA made it all the better. We can't wait to go to MA and see more!
Mickade did a TON of work this year in math. We got a little behind our goals with all the moving last year, so he had some extra do this year, and he did great. We started with Math Mammoth which, quite honestly, brought tears, so we moved to the ever-popular Singapore Math 3A. He had a few holes so we backtracked to 2B, moving through it quickly, then back into 3A. He did great with the work, but, quite honestly, the way this program teaches math was too spiral for him and we had tears on a daily basis. I pushed and pushed him through it, when I finally decided this was NOT the vision I had for homeschooling. Never once did I picture us screaming and crying every day when math came out, nor was it EVER this way before us. I'm not sure why it took so long for the lightbulb to go off in my head, but it finally did and we made one more change, this time to Math-U-See. It is mastery based, and different from other curricula in that it focuses on one thing each year. I put Mickade in Gamma, which is multiplication, and he took off! It has been absolutely fantastic for him. He watches a dvd lesson, then does worksheets until he understands it. The program has a whole set of unit blocks that goes with it, and they are used to help the child quite literally see math. He loves it (well, "loves" may be a strong word, but I can say we have not had fighting and tears since we switched.) Because he had background in multiplication but the old program didn't really allow him to get mastery, we were able to go through most of the year's work quite quickly. Out of 30 lessons, we are now on 24 I think, and he will finish it up over the summer. The way it's set up is great, because there are 3 pages for each lesson that focus on the new material, then 3 more that include that plus systematic review of everything from the past. The system makes it easy to customize to each child, since we can do less of the worksheets on topics he gets quickly, and more on the ones he doesn't. There is even a worksheet generator on the website if you need still more. Long story short, he took his first standardized test since VA requires them, and though I don't have the results yet, he kicked butt in math. :) A little hard work goes a long way!
Lillian did great this year. We tend to keep things laid back in K and 1. Lillian is a go-getter though, and even though I had started her with Rightstart Math, she had to have workbooks like Mickade, so she wound up completing Singapore Math 1A & most of 1B, all on her own. Seriously. I barely discussed and answer with her at all. I've learned this year that she is very independent (well, I knew that, but not in regard to learning lol) and hardly wants me in the equation at all! I'm making some curriculum changes for next year, even from what I used with Mickade at this age. I still really like First Language Lessons, but I can tell already she is going to fight me all the way with too much mom-lead work. Since I don't really like Singapore Math, Lillian will move on to Math Mammoth 2 in the fall, since it is an excellent program similar in rigor to Singapore but written to the student, so she can retain her independence and use me when needed! That girl will argue something to death, and never admit she was wrong. She "doesn't need" me to teach her. If she makes a mistake, she finds a way to back out of it as if she knew the real answer, she just wrote that one for fun. Ah, these will be interesting times with her!
Summer is here though, and so is the fun! Our neighborhood is jumping with new kids, they are out playing all the time, and they have a few weeks of camp starting tomorrow (read: mommy vacation time.) We're going to spend most of our time hanging out and having fun this summer, but I'll be slipping in Real Science 4 Kids Chemistry, Pre-Level, over the summer. They've been asking for chemistry and this actually looks FUN, so who am I to deny them? I've never seen a chemistry book explain things to kids in such an amazing way, maybe my kids will have a chance at making it through college chemistry if they need it to achieve their dreams!
Sunday, April 17, 2011
Jamestown Settlement
Jamestown Settlement is a wonderful place to go with your family. Aside from a great indoor museum, they have recreated the Powhatan camp (where Pocahontas lived) and Jamestown...it literally brings history alive. We have a blast there. Homeschool week was our second time there, and everyone still loved it. They had classes for the kids as well. I'm going to include photos from both of our visits. We read Pocohantas' biography, and this was like stepping into the story. Magical!
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| Learning about Powhatan life |
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| Map of the settlers' route to Jamestown |
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| In a Powhatan home |
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| scraping deer hide |
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| grinding corn |
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| playing native games |
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| Trying on armor in the Jamestown settlement |
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| learning about weapons |
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| Mickade gets put to work! |
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| Down below in one of the life-size ship models |
Homeschool Week in the Colonial Triangle
The first week of March was full of fun for us! We've been studying early American History this year, and had the opportunity to go to special programs and have discounted rates at Jamestown Settlement, Yorktown Victory Center, and Colonial Williamsburg. It was fantastic! All of our reading literally came to life.
We got a behind the scenes tour of the horses and carts, called "Bits and Bridles." The kids learned a little bit about the animals kept here, what types they breed, and got to see the carts up close and the horses in the stables (which was their favorite part.) They have old breed working horses, and rare sheep and chickens. 
Colonial Williamsburg
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| blacksmith |
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| silversmith |
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| A much needed break for Mom |
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| At the wagon wheel maker's | ' |
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| The Millinery....clothing shop. |
We got a behind the scenes tour of the horses and carts, called "Bits and Bridles." The kids learned a little bit about the animals kept here, what types they breed, and got to see the carts up close and the horses in the stables (which was their favorite part.) They have old breed working horses, and rare sheep and chickens. 
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| Look at the size of that wheel! |
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| The Barber....who actually makes wigs. Mickade is checking out the different hair options (goat, horse, human....) |
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| Enjoying a cup of drinking chocolate after a tour of the coffee shop |
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| Enjoying some Colonial games |
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| After missing several times, Lucy decided this game was best played up close. |
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| Setting the table for Mr. Powell (Lucy boldly decided Mr Powell's seat was hers.) |
I'd like to note that all the shops, etc in Williamsburg are actual working workshops. The blacksmith makes the nails, etc that restore the buildings....the wagon wheels are used on real wagons...they make their own dresses at the millinery....the shoemaker makes the shoes they wear (and it take 8-12 hours per pair, mind you!) It's an excellent experience and I highly recommend it!
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